The FH Foundation started 2021 off with an impactful Listening Session with the Food and Drug Administration (FDA) Center for Drug Evaluation and Research Division of Diabetes, Lipid Disorders, and Obesity (DDLO) on Homozygous Familial Hypercholesterolemia (HoFH) on January 4. Kate Robinson and … Read More
FH News & Blog
You’re invited to join the FH Foundation for our annual FH Community Forum “Inherited High Cholesterol: Journeys to FH Diagnosis and Care.” This year’s event will be held virtually on Saturday, December 12 at 12:00 pm ET.
The FH Community Forum is open to individuals with familial hypercholesterolemia … Read More
We are excited to announce new data from the FH Foundation’s CASCADE FH® Registry was published in the The Journal of Pediatrics.
Let’s face it 2020 is certainly going to be a year to remember for all of us. For one, many of us will be celebrating the holidays differently and hopefully on a smaller scale. For me, I’ll be cooking an entire Thanksgiving Dinner for my family of four instead of attending the usual … Read More
The FH Foundation is pleased to report that the first-ever FH Advocacy Group in Iraq was launched on May 22, 2020. Ms. Fatima Lahmood, a strong FH warrior living with Familial Hypercholesterolemia (FH) and a pharmacy student, has taken on the leadership role as patient representative, working with … Read More
Blog Post from My Journey with Familial Hypercholesterolemia and Heart Disease
Disclaimer: This entry is meant to give you some ideas about what to do if you’re bored during the pandemic (or when you can’t leave the house much). Always listen to the medical officials’ recommendations about … Read More
Increasing screening for familial hypercholesterolemia is critical for finding the 85% of individuals who are not diagnosed today. The FH Foundation leads critical research to uncover some of the barriers for cascade screening, also known as family screening, and genetic testing in the United States.
Recently, … Read More
COVID-19 continues to dominate the news. As I write this blog the United States is reporting 793,919 confirmed cases and 42,474 deaths – the numbers change daily. Lots of data is emerging from China, Italy, and the hardest hit places in the United States such as New York City. While this is a … Read More
As the days go by we are learning more about the cardiac complications related to infection with COVID-19. One concern that has emerged is the potential increased cardiac risk for people with elevated Lipoprotein(a) levels, or Lp(a) for short. As you likely know, people with familial hypercholesterolemia … Read More
The world has shifted dramatically in the last few weeks to respond to coronavirus (COVID-19). We are working, home schooling, and keeping our families “safe at home.”
The mission of the FH Foundation – to save lives across generations – remains the same. Our work in familial hypercholesterolemia … Read More