The FH Foundation is pleased to report that the first-ever FH Advocacy Group in Iraq was launched on May 22, 2020. Ms. Fatima Lahmood, a strong FH warrior living with Familial Hypercholesterolemia (FH) and a pharmacy student, has taken on the leadership role as patient representative, working with … Read More
Blog Post from My Journey with Familial Hypercholesterolemia and Heart Disease
Disclaimer: This entry is meant to give you some ideas about what to do if you’re bored during the pandemic (or when you can’t leave the house much). Always listen to the medical officials’ recommendations about … Read More
Increasing screening for familial hypercholesterolemia is critical for finding the 85% of individuals who are not diagnosed today. The FH Foundation leads critical research to uncover some of the barriers for cascade screening, also known as family screening, and genetic testing in the United States.
Recently, … Read More
COVID-19 continues to dominate the news. As I write this blog the United States is reporting 793,919 confirmed cases and 42,474 deaths – the numbers change daily. Lots of data is emerging from China, Italy, and the hardest hit places in the United States such as New York City. While this is a … Read More
As the days go by we are learning more about the cardiac complications related to infection with COVID-19. One concern that has emerged is the potential increased cardiac risk for people with elevated Lipoprotein(a) levels, or Lp(a) for short. As you likely know, people with familial hypercholesterolemia … Read More
The world has shifted dramatically in the last few weeks to respond to coronavirus (COVID-19). We are working, home schooling, and keeping our families “safe at home.”
The mission of the FH Foundation – to save lives across generations – remains the same. Our work in familial hypercholesterolemia … Read More
As coronavirus virus disease 2019 (COVID-19) continues to spread in the United States and worldwide, the FH Foundation has received several questions related to the risk posed by COVID 19 for people with familial hypercholesterolemia (FH) and potential concerns about FH treatments at this time.
People … Read More
Dear Friends:
We find ourselves in one of the most challenging situations in world history. It is crucial for all of us to follow the guidance on handling the coronavirus (COVID-19) provided by the CDC, which is updated daily. This said, it is important for our FH community to be aware of … Read More
Blog Post from My Journey with Familial Hypercholesterolemia and Heart Disease
You will learn fast that when it comes to FH you very often don’t take just one medication. You take several. You don’t follow up with just one test. You follow up with multiple tests (blood tests, imaging, … Read More
When the FH Foundation asked me to write Avery’s story for Rare Disease Day, I felt an immense amount of pressure to get it just “right.” It’s such an important story and I know with this fast-paced world, getting people to stop scrolling and read past the title would be difficult. What does … Read More
