As coronavirus virus disease 2019 (COVID-19) continues to spread in the United States and worldwide, the FH Foundation has received several questions related to the risk posed by COVID 19 for people with familial hypercholesterolemia (FH) and potential concerns about FH treatments at this time.
People … Read More
When the FH Foundation asked me to write Avery’s story for Rare Disease Day, I felt an immense amount of pressure to get it just “right.” It’s such an important story and I know with this fast-paced world, getting people to stop scrolling and read past the title would be difficult. What does … Read More
Join us at the 2020 FH Global Summit
There is only one conference entirely devoted to the care and treatment of familial hypercholesterolemia (FH) – the FH Global Summit. Each year, this invitation only event brings together unique voices to inspire and advent change.
One single track ensures … Read More
Blog Post from My Journey with Familial Hypercholesterolemia and Heart Disease
How in the blue blazes has it come to be December already?? I cannot believe that my last blog was in July! We were eating peaches and getting our skin scorched in the sun and now, we’re watching the Christmas tree … Read More
We are excited to announce this new collaboration with Geisinger! We have enclosed the press release below and look forward to updating you on our progress.
Researchers at Geisinger have received $2.8 million from the National Heart, Lung, and Blood Institute of the National Institutes of Health to … Read More
The FH Foundation is a true partnership of individuals and families impacted by FH, and the healthcare professionals who diagnose and treat FH. Together, we are raising awareness of FH, driving improved diagnosis, making sure individuals know their treatment options and opportunities for clinical … Read More
FIND FH® Makes Identifying and Diagnosing Individuals at Genetic Risk for Early Heart Attacks and Stroke Possible
FH Foundation Study Published Online in The Lancet Digital Health and Presented at FH Global Summit
On October 21, 2019 the FH Foundation announced that a … Read More
Familial Hypercholesterolemia Global Impact
In 1998, the World Health Organization (WHO) and several members of the international FH Community published the WHO Report on Familial Hypercholesterolemia (FH). This prescient document included 11 recommendations to address the large gaps in diagnosis and … Read More
Florida State Governor and Miami Dade County Issued Proclamations in Recognition of September 24 as FH Awareness Day
MIAMI (September 26, 2019) – More than 100 VIPS gathered to acknowledge Familial hypercholesterolemia (FH) day on September 24th at the St. Regis Bal Harbour Resort for a panel … Read More
Individuals with familial hypercholesterolemia (FH) were able to lower their cholesterol under FH specialty care, but many are still not meeting LDL-cholesterol targets, according to the FH Foundation’s CASCADE FH® Registry. In new research published in the October issue of Atherosclerosis, 52 … Read More
