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Advocacy OrganizationsGlobal Genes Mended Hearts National Organization of Rare Diseases (NORD) WomenHeart
Government OrganizationsCenter for Disease Control and Prevention Patient Network FDA Million Hearts National Heart, Lung, and Blood Institute
Citizens for Public Action on Blood Pressure and Cholesterol, Inc. National Institutes of Health
Professional OrganizationsAmerican Academy of Pediatrics American College of Cardiology American Society of Preventive Cardiology Association of Black Cardiologists American Heart Association International Atherosclerosis Society National Lipid Association National Society of Genetic Counselors Preventive Cardiac Nurses Association (PCNA) MEDPED – Make Early Diagnosis to Prevent Early Death
Other ResourcesMothertoBaby Patient Worthy