FH Treatments and COVID-19

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As coronavirus virus disease 2019 (COVID-19) continues to spread in the United States and worldwide, the FH Foundation has received several questions related to the risk posed by COVID 19 for people with familial hypercholesterolemia (FH) and potential concerns about FH treatments at this time.
People … Read More


Test

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Join us at the 2020 FH Global Summit

There is only one conference entirely devoted to the care and treatment of familial hypercholesterolemia (FH) – the FH Global Summit. Each year, this invitation only event brings together unique voices to inspire and advent change.
One single track ensures … Read More


FH Awareness Day 2019 - Miami Event

FH Foundation and Miami Florida Community Highlights Familial Hypercholesterolemia Awareness Day to Reduce Premature Heart Disease

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Florida State Governor and Miami Dade County Issued Proclamations in Recognition of September 24 as FH Awareness Day

MIAMI (September 26, 2019) – More than 100 VIPS gathered to acknowledge Familial hypercholesterolemia (FH) day on September 24th at the St. Regis Bal Harbour Resort for a panel … Read More


New CASCADE FH Registry Data Published: Familial Hypercholesterolemia Patients at High Risk for Cardiovascular Events Despite Treatment

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Individuals with familial hypercholesterolemia (FH) were able to lower their cholesterol under FH specialty care, but many are still not meeting LDL-cholesterol targets, according to the FH Foundation’s CASCADE FH® Registry. In new research published in the October issue of Atherosclerosis, 52 … Read More


Use of Twitter to Promote Awareness of Familial Hypercholesterolemia


FH Advocate for Awareness, Heather S.

Illustration relating to Costs and Health Insurance

Why are FH patients paying a higher price for PCSK9 inhibitor treatment when a lower price is available, and what can we do about it?

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Affordable prescription drugs are necessary so individuals can benefit from advances in medicine to treat conditions such as familial hypercholesterolemia. Medical research and innovation make it possible to actually prevent or delay heart disease in people born with FH. All it takes is early diagnosis … Read More


FIND FH

Blog from FH Advocate for Awareness - Mackenzie

Racing to End Family Heart Disease – Me, Grandpa Lyle and the Race for FH

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30 different workouts in 7 weeks. You may be wondering how I got here. Well, to answer that, we have to go back a little bit.
In 1966 (ok, we’re going back a lot), Lyle Hill was dancing with his wife at the Elk’s Club when he had a heart attack. He died that night at just 30 years old. His daughter, … Read More


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