The FH Foundation is pleased to report that the first-ever FH Advocacy Group in Iraq was launched on May 22, 2020. Ms. Fatima Lahmood, a strong FH warrior living with Familial Hypercholesterolemia (FH) and a pharmacy student, has taken on the leadership role as patient representative, working with … Read More
Increasing screening for familial hypercholesterolemia is critical for finding the 85% of individuals who are not diagnosed today. The FH Foundation leads critical research to uncover some of the barriers for cascade screening, also known as family screening, and genetic testing in the United States.
Recently, … Read More
COVID-19 continues to dominate the news. As I write this blog the United States is reporting 793,919 confirmed cases and 42,474 deaths – the numbers change daily. Lots of data is emerging from China, Italy, and the hardest hit places in the United States such as New York City. While this is a … Read More
As the days go by we are learning more about the cardiac complications related to infection with COVID-19. One concern that has emerged is the potential increased cardiac risk for people with elevated Lipoprotein(a) levels, or Lp(a) for short. As you likely know, people with familial hypercholesterolemia … Read More
As coronavirus virus disease 2019 (COVID-19) continues to spread in the United States and worldwide, the FH Foundation has received several questions related to the risk posed by COVID 19 for people with familial hypercholesterolemia (FH) and potential concerns about FH treatments at this time.
People … Read More
Join us at the 2020 FH Global Summit
There is only one conference entirely devoted to the care and treatment of familial hypercholesterolemia (FH) – the FH Global Summit. Each year, this invitation only event brings together unique voices to inspire and advent change.
One single track ensures … Read More
Florida State Governor and Miami Dade County Issued Proclamations in Recognition of September 24 as FH Awareness Day
MIAMI (September 26, 2019) – More than 100 VIPS gathered to acknowledge Familial hypercholesterolemia (FH) day on September 24th at the St. Regis Bal Harbour Resort for a panel … Read More
Individuals with familial hypercholesterolemia (FH) were able to lower their cholesterol under FH specialty care, but many are still not meeting LDL-cholesterol targets, according to the FH Foundation’s CASCADE FH® Registry. In new research published in the October issue of Atherosclerosis, 52 … Read More
Researchers at the Mayo Clinic wanted to know if Twitter could help build awareness of familial hypercholesterolemia (FH). The answer was an emphatic yes. In their article published in leading cardiovascular journal, Circulation: Genomic and Precision Medicine, the team compared activity on social … Read More
On May 7, 2019 FH Advocate, April Donelson, chose to spend her birthday on Capitol Hill, advocating to make familial hypercholesterolemia (FH) a public health priority with Florida and Texas Congressional leaders. April shared “Ryan’s story” to make sure everyone understands the importance … Read More