FDA Listening Session

My Journey with FH and Heart Disease

My Journey with FH and Heart Disease

Avery - 11 year old girl with HoFH

HoFH means . . . HOPE

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When the FH Foundation asked me to write Avery’s story for Rare Disease Day, I felt an immense amount of pressure to get it just “right.” It’s such an important story and I know with this fast-paced world, getting people to stop scrolling and read past the title would be difficult. What does … Read More

Community in Action

I have FH podcast cover art

FH Advocate for Awareness, Heather S.

Blog from FH Advocate for Awareness - Mackenzie

Racing to End Family Heart Disease – Me, Grandpa Lyle and the Race for FH

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30 different workouts in 7 weeks. You may be wondering how I got here. Well, to answer that, we have to go back a little bit.
In 1966 (ok, we’re going back a lot), Lyle Hill was dancing with his wife at the Elk’s Club when he had a heart attack. He died that night at just 30 years old. His daughter, … Read More