CASCADE FH Registry – Clinical
TOTAL ENROLLED 40 clinical sites
The FH Foundation has designed the CASCADE FH Registry as an innovative hybrid Initiative to maximize reach and data collection. Data is collected from both clinicians and patients. The registry clinical sites are made up of lipid centers across the US.These lipid clinics enter baseline and follow-up data on demographic, laboratory value, treatment, and clinical events.
- Identify and enroll FH patients through clinic-based, community-based, and family-based screening initiatives to track therapy, patient-reported outcome, and clinical outcomes overtime.
- Evaluate patterns of real world clinical practice and patient experiences to contribute to the state of scientific knowledge about FH diagnosis and management, quality of life and long-term health outcomes.
- Maximize the adherence to guideline-recommended lipid lowering treatments for patients with FH.
- Promote awareness of FH prevalence, risk factors and optimal management through education at both the patient and provider levels.
As part of our mission to expand scientific understanding of FH, in collaboration with clinical site principal investi-gators (healthcare providers and academicians), the FH Foundation’s Publications Committee has published the results of the CASCADE FH Registry in the form of abstracts, manuscripts and posters at medical conferences as well as peer-reviewed journals. For a list of our publications click here.