FH Advocates for Awareness Training

Raise awareness and change lives by volunteering with the FH Foundation.

Familial Hypercholesterolemia (FH), Homozygous Familial Hypercholesterolemia (HoFH), elevated Lipoprotein(a) (Lp(a)) and other polygenic lipid disorders are all under-diagnosed and under-treated, leaving people at risk for early, aggressive cardiovascular disease. If you want to be a part of making sure that families with inherited risk for heart disease, stroke, and premature death have a chance to live longer, healthier lives, then please join us in the fight.

The FH Foundation is always looking for motivated individuals to become FH Foundation Advocates for Awareness. You can apply by completing the form here. A member of the FH Foundation Team will follow up with you to set up a phone interview and tell you more about the program. Participants are selected based on the strength of their application, including relevant life experiences, volunteer history, and/or recommendations.

The FH Foundation accepts applications throughout the year. We hold an annual FH Foundation Advocates for Awareness Training Workshop. Attendees learn more about FH, elevated Lp(a), and polygenic lipid disorders from medical experts and are trained to tell their personal stories.

FH Advocate for Awareness Quote - Liz T.

Application materials:

  • FH Advocates for Awareness Participant Agreement: Please read the FH Foundation Advocate for Awareness Participant Agreement. By completing and submitting the application, you understand and agree to the responsibilities outlined in this agreement upon acceptance as an FH Foundation Advocate for Awareness.
  • Application Form: Please complete the application form here.
  • Submit personal story: Please submit your 1-2 page personal story to info@thefhfoundation.org.

Who may apply to become an FH Foundation Advocate?

Individuals who have Familial Hypercholesterolemia (FH), high Lp(a), or polygenic lipid disorders and their family members and who live in the United States.

The FH Foundation is committed to a diverse membership, and encourages individuals of all ages, genders, racial and ethnic backgrounds, native languages, and income and education levels, to apply.

About the FH Foundation Advocates for Awareness™ Program

The Advocates for Awareness program is part of the FH Foundation’s Community in Action activities. This incredible network of trained volunteers have stepped up to share their stories to raise awareness, to support their peers who are newly diagnosed, and to make sure the FH Foundation continues to prioritize what is most important to the people we serve—individuals with FH, HoFH, elevated Lp(a), and polygenic lipid disorders and their families.

FH Foundation Advocates support the mission of the FH Foundation by:

  • Raising awareness by sharing their story.
  • Fundraising to support the FH Foundation’s work.
  • Offering Peer Support to others.
  • Advising the FH Foundation and our research partners.

FH Foundation Advocates Training Workshop

Each year we hold an Advocates for Awareness Training Workshop to train new Advocates. This is your opportunity to meet other volunteers and the FH Foundation Team, receive a comprehensive orientation to the Foundation, learn the medical aspects of FH, HoFH, elevated Lp(a) and cardiovascular disease from lipid specialists, and participate in one-on-one coaching on how to tell your personal story in a compelling manner. This in-depth training experience is intended to prepare you to be an effective Advocate for Awareness.